clinical trial · NCT06976606
A Study to Assess Real-world Patient Characteristics and Clinical Course for Symptomatic Patients With PKP2-ACM
Arrhythmogenic CardiomyopathyPKP2-ACMPKP2-ARVC
brief summary
An observational study to assess real-world patient characteristics and clinical course of disease in participants with PKP2-ACM.
started
Jan 23, 2024
primary completion
Jul 1, 2027
completion
Sep 1, 2027
last updated
May 16, 2025
detailed description
SNAPSHOT-PKP2 is an observational, multicenter study that consists of 2 parts, a retrospective EMR review (up to 2 years) and a prospective observational study (1 year), to evaluate the clinical burden of illness of patients with PKP2-ACM, and to prospectively evaluate changes in key cardiac parameters and patient-reported outcome measures (PROMs) associated with PKP2-ACM progression.
official title
An Observational Study to Assess Real-world Patient Characteristics, Clinical Course, and Treatment Patterns for Symptomatic Patients With Arrhythmogenic Cardiomyopathy (ACM) Due To a PlaKoPhilin-2 Pathogenic Variant (PKP2)
sourced from ClinicalTrials.gov · pharmadog mirrors structured fields, not the full protocol