clinical trial · NCT03745521
Study of Longitudinal Observation for Patient With X-linked Hypophosphatemic Rickets/Osteomalacia in Collaboration With Asian Partners
Kyowa Kirin Co., Ltd.·—·active not recruiting·n = 226
X-Linked Hypophosphatemiano intervention
brief summary
Through observation of patients with X-linked hypophosphatemic rickets/osteomalacia (XLH) for up to 10 years, the study intends to collect data that allow achievement of the following objectives: 1. To determine medical characteristics of the disease and the disease process 2. To determine physical and psychological burden on patients as well as economic burden 3. To assess the efficacy and safety of the treatment of the disease
started
May 1, 2018
primary completion
Dec 31, 2028
completion
Dec 31, 2028
last updated
Sep 5, 2025
official title
An International, Multicenter, Prospective, Longitudinal Observational Study for Patient With X-linked Hypophosphatemic Rickets/Osteomalacia
sourced from ClinicalTrials.gov · pharmadog mirrors structured fields, not the full protocol