clinical trial · NCT02306720
Registry of Patients With Hypophosphatasia
Alexion Pharmaceuticals, Inc.·—·enrolling by invitation·n = 1,571
Hypophosphatasia (HPP)
brief summary
In this prospective, observational, long term registry patients of all ages with a diagnosis of hypophosphatasia (HPP) are followed at participating sites in multiple countries.
started
Jan 20, 2015
primary completion
Dec 31, 2031
completion
Dec 31, 2031
last updated
Feb 27, 2026
detailed description
The HPP Registry is an observational, prospective, long-term registry designed to collect data on HPP epidemiology, disease history, clinical course, symptoms and burden of disease from patients of all ages who have a diagnosis of HPP.
Evaluation of safety and effectiveness data in patients with HPP who have/are receiving treatment with Asfotase alfa
official title
An Observational, Longitudinal, Prospective, Long-Term Registry Of Patients With Hypophosphatasia (HPP)
sourced from ClinicalTrials.gov · pharmadog mirrors structured fields, not the full protocol